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Terrible Rash
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Terrible Rash
So glad to learn of this forum as I am not on any social media sites! I have developed a significant rash that started a few months ago as little itchy red bumps, and it has now spread to both of my hands, arms and legs. I saw a dermatologist a few weeks ago and was told that she is seeing it, doesn’t know what it is, but I was put on a steroid taper and a topical steroid. The rash didn’t worsen during that time but since has continued to spread. It itches like a bad case of poison oak and I have not found a topical agent that gives more than a short time of relief. Benadryl has become my nighttime friend.
I have gone through the FLCCC protocol for mast cell activation syndrome (two weeks) but have not had any relief. The only thing that has changed in my life in the last four years has been receiving the initial Pfizer series in 12/20 & 1/21. I work in a hospital so of course we all “had” to have the shots. I looked up my lot number on “how bad is my batch” and it is one of the bad ones, not the worst but still way up on the list that was one of the batches delivered to my hospital. I have listened to Dr. McCullough indicate that we are probably now going to be looking at autoimmune disorders and cancer so of course I can’t help but wonder if this whole thing is related. I am 62, have always been very healthy, eat an organic diet that is very focused on the alkaline side, have no family history of autoimmune disorders. I am waiting for some lab results and see my dermatologist this week for hopefully a biopsy as it is so much worse than my first visit.
I wonder if there is anyone out there that has seen or experienced this, or knows of a provider who may be in the Southern Oregon area or via telemedicine that can help me get to the bottom of this. The last picture is what it looked like less than a month ago and the other ones are current. Thanks to anyone who can help me out.
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13 Replies
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Hello Bluebird.
I hope we can help each other with our combined research. Main difference I can see is that neither my mother nor I have it on our hands and the history as below.
I have posted in a two forums about the rash that both my mother and I developed about 6 weeks ago.
My case study-
My initial hypothetical –
1. shedding of Covid vax nano particles/spike as studied extensively by Dr P. Kory. (Neither my mother or myself have had Covid, nor been injected with it. I did have a bad gastic flu last year but tested negative for Covid. Four days ago I had blood drawn for Covid antibodies and the nucleocapsid privately as no Dr is likely to order them through Medicare) as per discussed here if positive to nuclecapsid then infection with virus, if not, only Covid antibodies then injection (my addition ??shedding) – https://jpsaleebymd.substack.com/p/neuropasc-aka-neurological-covid?utm_source=substack&utm_medium=email#media-6a6bf92d-f838-45cb-82a2-a11d4c6041e3
2. Bed bugs – suggested by another member on this Forum, not found, all bedding washed etc.
3. Rainwater – filter stopped way ahead of time, many pollutants in air that land on roof, rainwater tanks getting low as no rain all summer except one night (?January but possibly not more than would have been flushed away in first flush), red dust toxin report from Alcoa mine and refinery 20 kms to the east (prevailing summer wind is from the east). Awaiting water test & hair test report.
My 94 year old mother does not suffer allergies or ill health other than dementia (not Alzheimer’s), not on medication etc whereas I suffered over 9 months of what was possibly idiopathic chronic urticaria in September 2020. No cause found, no systemic inflammation etc and biopsy – spongiosis. (I am now having other thoughts about its origin although Covid was rare in Western Australia – highly quarantined state, and I was unlikely to have come in contact with it then & pre jabs.)
We had an overseas guest stay for three weeks in February this year. One week after their departure (approximately 4 weeks after starting to drink rainwater without filtering it) both my mother and I developed an itchy rash on chest and back and then upper legs. The rash has subsided significantly in my mother but has continued in myself. I used betamethasone cream liberally for my mother, whereas I have used a mixture of fresh aloe vera plant, healing oils, and oatmeal like anti itch creams. Systemic antihistamines were tried a few times with no lasting effect (a couple of hours maybe). My mother still has some marks on her back and scratches occasionally but is not disturbed by the rash. Up until yesterday I was going mad with the itching (varies day to day and area).
I was already taking Vit D, Quecertin, & Resveratrol more recently, and a formula for varicose veins so ordered NAC, Nattokinase, Serrapeptase. I have also ordered Ivermectin from India (hope it gets through customs). See photo – ones to be taken on empty stomach are first.
I started taking the new supplements on the 30th (now taken 10 doses) and have felt no different – tired but able to push through and do gardening, cleaning etc for a 2-3 hours per day. I have used betamethasone cream a couple of times when itch unbearable including when my left lower leg was swollen and oozing (venous insufficiency). I also started wearing support stockings again which has helped. The connection with venous insufficiency is also supported by this study information on id reactions and autoeczematisation. Note the connection to T lymphocytes, proinflammatory cytokines and the link to viruses.
Autoeczematisation
“Approximately 37% of patients diagnosed with stasis dermatitis develop an id reaction (Figure 1).
The pathogenesis of AE is uncertain, but circulating T lymphocytes play a role in this reaction. Normally, T cells are activated by a release of antigens after a primary exposure to a stimulus. However, overactivation of these T cells induces autoimmune reactions such as AE.7 Activated T lymphocytes express HLA-DR and IL-2 receptor, markers elevated in the peripheral blood of patients undergoing id reactions. After treatment, the levels of activated T lymphocytes decline. An increase in the number of CD25+ T cells and a decrease in the number of suppressor T cells in the blood may occur during an id reaction.7-9 Keratinocytes produce proinflammatory cytokines, such as thymic stromal erythropoietin, IL-25, and IL-33, that activate T cells.10-12 Therefore, the most likely pathogenesis of an id reaction is that T lymphocytes are activated at the primary reaction site due to proinflammatory cytokines released by keratinocytes. These activated T cells then travel systemically via hematogenous dissemination.
The spread of activated T lymphocytes produces an eczematous reaction at secondary locations distant to the primary site.9
…
In later stages, vesicles disseminate to the legs, arms, and trunk, where they group to form papules and nummular patches in a symmetrical pattern.5,13-15 These lesions may be extremely pruritic. The pruritus may be so intense that it interrupts daily activities and disrupts the ability to fall or stay asleep.16
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Viral infections that can cause an id reaction are herpes simplex virus and molluscum contagiosum.27-29 Scabies, leishmaniasis, and pediculosis capitis are parasitic infections that may be etiologic.14,30,31 In addition, noninfectious stimuli besides stasis dermatitis that can produce id reactions…”
You may find this 2021 research helpful if getting a biopsy –
Covid and eczema
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8431833/
Here are some photos of the rash on my mother (26th February – early onset & myself on the 2nd March although I had it on the 26th as well. I think it started a few days earlier on the chest). This is my left leg last night when the itch got so bad I used betamethasone cream mainly on the right leg and today both are reduced in itch and redness especially the right leg.
References on FLCCC site
Fibrin – Nattokinase can break down fibrin to potentially prevent clots, reduce BP, blood thinning, ?amyloid fibrils, Take 2000 to 4000 FU twice a day
https://covid19criticalcare.com/wp-content/uploads/2023/11/Dr.-Carmans-Guide-to-Nattokinase-.pdf
Shedding is real
Skin rashes one of most common symptoms
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Wow, you have been through a lot. I had lab work returned today that is pointing towards an autoimmune disorder but I have to see rheumatology to determine what exactly. I am already on so much of the FLCCC protocol as well as the Spike Support for several months, but this is a fairly new issue and I haven’t had relief. We keep on keeping on.
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Hi again. I also remembered this comment from Corrie (also depicts one of the cases) under Dr Kory’s substack articles on shedding. She has developed mast cell activation and Cutaneous T cell lymphoma (sounds horrific and sending love and compassion as you wait a diagnosis – https://dermnetnz.org/topics/cutaneous-t-cell-lymphoma). Have you checked out the telemedicine available from FLCCC. I can’t access it from Australia.
https://pierrekorymedicalmusings.com/p/shedding-part-8-a-deluge-of-clinical/comments
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And I may well be reaching out to Dr. Kory depending upon the results I get from local docs.
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I hope you are getting answers and relief. My blood tests finally came back – negative for Covid antibodies and nucleocapsid. So I doubt it was shedding. Rainwater test came back pretty good but my hair analysis indicates many heavy metals. Itchy rash continues.
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Hi Bluebird — Welcome to the community!
Which parts of the MCAS protocol have you tried? Assuming you are using the protocol on page 22 of the I-RECOVER Post Vaccine protocol?
Did you see there is a new low histamine guide?
https://covid19criticalcare.com/tools-and-guides/what-is-a-low-histamine-diet/
And a histamine intolerance food infographic? https://covid19criticalcare.com/wp-content/uploads/2024/03/FLCCC-Histamine-Intolerance-Yes-No-Foods-min.pdf
If it is coming from mast cell issues — they are tricky to treat and it takes a lot of trial and error to figure out what your triggers are. I’m not a doctor, just a mom with a young adult daughter who has had severe MCAS since she was in her mid teens. For her, it takes a low histamine diet + ketotifen + quercitin + cromolyn + hydroxyzine to keep her reasonably controlled.
Think if it were me, I would also be doing the post vax protocol with the nattokinase, bromelein & curcumin (and if I had to choose one thing to start with it would be the nattokinase).
Check out the FLCCC provider directory if you’re looking for someone to help treat:
https://covid19criticalcare.com/providers/Don’t overlook providers who are out of your state but do Telehealth. Know that Dr. Kory’s clinic (https://drpierrekory.com/) does. Also folks like Dr. Mollie James (https://jamesclinic.com/) — she is in MO but her team does telehealth for people in many other states.
covid19criticalcare.com
What is a Low-Histamine Diet? Your Path to Health!
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Sorry for the delayed response. I have been on the H1 & H2 blockers as well as cromolyn, an antihistamine diet, and of course the supplements and Ivermectin. So far nothing seems to touch it and today I had labs come back that indicate I have an autoimmune disorder, so more diagnostics ahead. But I so appreciate your kind response!
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I have to qualify my comments by explaining that I have no experience with the “vaccines” ~ However, I can attest to the fact that an Epsom salt soak can help immensely with pain and itching:
> https://bra.in/3j88ZkI would also strongly recommend utilizing the FLCCC’s post vax protocol.
> https://workflowy.com/s/beyond-covid-19/SoQPdY75WJteLUYx#/4f9a736f615b
In addition, there is considerable evidence linking skin issues with gut issues, and the spike protein is known to wreak havoc in the gut. For this reason, any work you do to help heal your gut may also help with skin issues:
> https://bra.in/5v2Wz6 -
The only thing I can add to this excellent stream of texts is the Book by Dr. Lawrence Afrin called ” Never Bet Against Occam”. Dr Afrin is acknowledged as the worldwide expert on mast cell activation syndrome. With the help of outstanding doctors, FLCCC Alliance, and this book, I have realized that I’ve had MCAS all my life and no doctor in the medical industrial complex ever diagnosed me properly. As a result of the vax jabs my MCAS has been exacerbated. Two sources (in no particular order and can be telemedicine) that can help you are:
Dr. JP Saleeby @ Carolina Holistic Medicine (800)-965-8482
Scott Marsland @ Leading Edge Clinic (608)-400-0141
Mast Cell Activation Syndrome is complex, and these individuals know how to treat.
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Thank you so much!
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I see you’re treating MCAS. Have you added the fibrinolytic enzymes to the protocol? I’ve seen it help in quite a few of our patients. I like Neprinol by Arthur Andrew Medical – it contrains, nattokinase, serrapeptase and bromelain.
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Wondering if you have you seen the enzymes helpful in MCAS that isn’t related to Covid?
My young adult daughter has severe MCAS — along with EDS & POTS — that she’s had for most of her life. Would be great to have another option that might improve her control a bit more.
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Hi Bluebird, I just joined this website looking for people who have skin issues. I see a lot of links to study in the replies, which I will start researching.
I am 62 and in good health generally. But I have had rashes for three years. I had mild eczema for several years before, pretty easy to treat, but noticed increasing issues with my skin as I was taking the three Moderna Covid doses in 2021 . The new rashes started in the armpit on one side (injection) but have now spread over much of my body. The rashes vary in character, and most are itchy. I have also lost a lot of hair. For a couple years I had pain in my axillary lymph nodes, but that seems to have gone away.
I just want to introduce myself with this post. I have only included one picture. Some of the rashes are hard to photograph without it feeling too private to put on the Internet.
I have consulted both regular MDs and two naturopaths who are my primary providers. I have tried many things, including the FLCCC protocols, leaky gut regimen, heavy metal detox, acupuncture, herbs, experimenting with diet and environmental triggers, etc I had a recent stem cell treatment which cleared up some of the rashing, but I still have problems. I think there is probably potential to still work on all of these same types of interventions, but I am frustrated that as careful as I am (organic, careful about blood sugar, moderate exercise, self care) I still have these skin problems three years on. It’s discouraging.
I’m looking forward to making some connections on this site.
Good luck, everybody!
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