Seeking pediatric oncologist

  • Seeking pediatric oncologist

    Posted by karisofia on April 17, 2024 at 4:08 pm EDT

    I am looking for options for a 16-year-old with leukemia. He had a bone marrow biopsy done. The first lab said the cancer was growing, time for a transplant. The second (supposedly more detailed) lab report said no cancer present. His parents desperately want to know why the two different results before going forward with the transplant.

    Does anyone have a referral for them?

    Thank you for any help you can offer.

    karisofia replied 1 week, 5 days ago 3 Members · 6 Replies
  • 6 Replies
  • Karen_flccc

    Organizer
    April 18, 2024 at 10:56 am EDT
    813 Activity Points
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    Here is the FLCCC provider directory lookup. There are also links to some other doctor lists as well.

    https://covid19criticalcare.com/providers/

    I would suggest emailing [email protected] too since this is a more specific request.

    • Karen_flccc

      Organizer
      April 18, 2024 at 6:14 pm EDT
      813 Activity Points
      1,840 Community Points

      Suggestion from Samantha, one of our FLCCC nurses: “IFM.org
      is a website that lists functional medicine providers who have
      certifications in functional medicine and often these people might have
      referrals.”

    • karisofia

      Member
      April 24, 2024 at 10:37 am EDT
      14 Activity Points
      105 Community Points

      Thank you. I failed to see this because apparently I didn’t have notifications set correctly.

      The FLCCC list does not help me find pediatric doctors. So far everyone I have contacted will not look at a case in a minor. I will check out the other site you mentioned.

    • karisofia

      Member
      April 24, 2024 at 5:27 pm EDT
      14 Activity Points
      105 Community Points

      Just to let you know, the email to FLCCC came back with a form response saying they get too many emails to give individual responses (which is understandable!). It then pointed me to the same links I have already visited.

  • sallysreallife

    Member
    April 24, 2024 at 11:05 am EDT
    11 Activity Points
    45 Community Points

    Have you all considered Fenbendazole? I’ve done a very deep dive into this (68yo health coach for 30 years) and results are fast and dramatic. I would suggest starting this until a firm diagnosis is reached.

    Please note that once a minor has been diagnosed with cancer, the parents may not refuse whatever treatment the doctor recommends or you can be accused of medical neglect. You can do adjunct treatments and there’s a way to do Fenben with conventional treatments.

    Another option is homeopathy, leukemia is very treatable with homeopathy.

    • karisofia

      Member
      April 25, 2024 at 9:56 pm EDT
      14 Activity Points
      105 Community Points

      Thank you for the suggestion. Fenbendazole would require a prescription, right? So far, I haven’t even located someone who will take him on since it is a pediatric case.

      On top of that, I am not a family member, just a more distant friend trying to help on the search. They are completely warn out trying to get a doctor to work with them. They need someone to order and look at a second biopsy, I think, and they can’t get anyone to do that. I don’t think they have enough energy left to handle a lot of extra ideas. If I could find an MD who was willing to take on a 16-year-old, that person could help them get the “traditional” help they need and possibly suggest more.

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